<div dir="ltr">Of possible interest. <div><br></div><div>Adrian </div><div><br></div><div><br><div class="gmail_quote">---------- Forwarded message ----------<br>From: <b class="gmail_sendername">Rebecca Tabasky</b> <span dir="ltr"><<a href="mailto:rtabasky@cyber.law.harvard.edu">rtabasky@cyber.law.harvard.edu</a>></span><br>
Date: Mon, Aug 4, 2014 at 10:06 AM<br>Subject: [report-release-list] New Report: "Integrating Privacy Approaches across the Research Lifecycle: Long-term Longitudinal Studies"<br>To: <a href="mailto:report-release-and-press-list@eon.law.harvard.edu">report-release-and-press-list@eon.law.harvard.edu</a><br>
Cc: David O'Brien <<a href="mailto:dobrien@cyber.law.harvard.edu">dobrien@cyber.law.harvard.edu</a>><br><br>
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<p dir="ltr"><span>Dear friends and colleagues,<br>
</span></p>
<p dir="ltr"><span>The Berkman Center for Internet & Society at
Harvard University is pleased to announce a new publication from
its <a href="https://cyber.law.harvard.edu/research/privacy_tools" target="_blank">Privacy
Tools for Sharing Research Data</a> project team, titled <a title="" href="http://papers.ssrn.com/sol3/papers.cfm?abstract_id=2469848" target="_blank">“Integrating
Privacy Approaches across the Research Lifecycle: Long-term
Longitudinal Studies.”</a></span></p>
<p dir="ltr"><span>This paper explores interdisciplinary approaches
to privacy in long-term longitudinal studies of human subjects.
Long-term longitudinal studies collect, at multiple points over
a long period of time, highly-specific and often sensitive data
describing the health, socioeconomic, or behavioral
characteristics of human subjects. The value of such studies
lies in part in their ability to link a set of behaviors and
changes to each individual, but these factors tend to make the
combination of observable characteristics associated with each
subject unique and potentially identifiable.</span></p>
<p dir="ltr"><span>Using the research information lifecycle as a
framework, the paper discusses the defining features of
long-term longitudinal studies and the associated challenges for
researchers tasked with collecting and analyzing such data while
protecting the privacy of human subjects. It also describes the
disclosure risks and common legal and technical approaches
currently used to manage confidentiality in longitudinal data.
Finally, it identifies urgent problems and areas for future
research to advance the integration of various methods for
preserving confidentiality in research data.</span></p>
<p dir="ltr"><span>The paper is the first in a series of reports
based on the Integrating Approaches to Privacy across the
Research Data Lifecycle workshop, held by the Privacy Tools for
Sharing Research Data project at Harvard University on September
24-25, 2013. The workshop convened over forty leading experts in
computer science, statistics, law, policy, and social science
research to discuss the state of the art in data privacy
research. The resulting conversations centered on the emerging
tools and approaches from the participants’ various disciplines
and how they should be integrated in the context of real-world
use cases that involve the management of confidential research
data. Additional reports are forthcoming in 2014.</span></p>
<p dir="ltr"><span>The full paper is available for download at SSRN:
</span><a href="http://papers.ssrn.com/sol3/papers.cfm?abstract_id=2469848" target="_blank"><span>"Integrating
Approaches to Privacy across the Research Lifecycle: Long-term
Longitudinal Studies"</span></a></p>
<h3><span>About the Privacy Tools for Sharing Research Data Project</span></h3>
<p dir="ltr"><span>Funded by the National Science Foundation, the
Privacy Tools for Sharing Research Data project is a
collaboration between the Berkman Center for Internet &
Society, the <a title="" href="http://crcs.seas.harvard.edu/" target="_blank">Center
for Research on Computation and Society (CRCS)</a>, the <a title="" href="http://www.iq.harvard.edu/" target="_blank">Institute for
Quantitative Social Science</a>, and the <a title="" href="http://dataprivacylab.org/" target="_blank">Data Privacy Lab </a>that
seeks to develop methods, tools, and policies to facilitate the
sharing of data while preserving individual privacy and utility.
</span></p>
<p dir="ltr"><span>Executive Director and Harvard Law School
Professor of Practice Dr. Urs Gasser leads the Berkman Center's
role in this exciting initiative, which brings the Center's
institutional knowledge and practical experience to help tackle
the legal and policy-based issues in the larger project. More
information about the project is available on the </span><a href="http://cyber.law.harvard.edu/research/privacy_tools" target="_blank"><span>Berkman
Center’s website </span></a><span>and the </span><a href="http://privacytools.seas.harvard.edu/" target="_blank"><span>official
project website</span></a><span>.</span></p>
<h3><span>About the Berkman Center for Internet & Society</span></h3>
<p dir="ltr"><span>The Berkman Center for Internet & Society at
Harvard University is a research program founded to explore
cyberspace, share in its study, and help pioneer its
development. Founded in 1997, through a generous gift from Jack
N. and Lillian R. Berkman, the Center is home to an ever-growing
community of faculty, fellows, staff, and affiliates working on
projects that span the broad range of intersections between
cyberspace, technology, and society. More information can be
found at </span><a href="http://cyber.law.harvard.edu/" target="_blank"><span>http://cyber.law.harvard.edu</span></a><span>.</span></p>
<h3><span>Contact</span><a href="mailto:dobrien@cyber.law.harvard.edu" target="_blank"><span></span></a></h3>
<p><a href="mailto:dobrien@cyber.law.harvard.edu" target="_blank"><span></span></a>Please
contact David O'Brien at <a href="mailto:dobrien@cyber.law.harvard.edu" target="_blank"><span>dobrien@cyber.law.harvard.edu</span></a>
with questions or media inquiries.</p>
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