<div dir="ltr">Hi Jon!<div><br></div><div>I've been increasingly recommending "samples" and "metadata only records" -- although that's also required a variety of new explanations to PIs what "no, them only asking you and you get to decide if they are good actors" is usually not idea. But it seems here you could specifically provide a comprehensive metadata record; a sample of a spreadsheet where data was captured (with example non real values) and a statement of "for interest, please contact Department Contact to arrange a Data Use Agreement with the Institution" </div><div><br></div><div>Abigail </div></div><br><div class="gmail_quote"><div dir="ltr" class="gmail_attr">On Fri, Jul 24, 2020 at 5:42 PM Jonathan Petters <<a href="mailto:jpetters@vt.edu">jpetters@vt.edu</a>> wrote:<br></div><blockquote class="gmail_quote" style="margin:0px 0px 0px 0.8ex;border-left:1px solid rgb(204,204,204);padding-left:1ex"><div dir="ltr"><div>Agnes, Yasmeen,</div><div><br></div><div>Thanks so much for your quick replies! <br></div><div><br></div><div>And was not clear that this <u>particular research does not have human subjects</u>! This is experimentation done in chambers in labs with particles containing pathogens. So I was more thinking about the 'weaponizing pathogens' concerns that Yasmeen discussed.</div><div><br></div><div>My apologies Agnes; your description of how to handle the de-identification of the data and discussion with IRB sounds great to me for human subjects research...it just doesn't happen to pertain in this case. That's what I get for trying to dash off a question just before the weekend! <br></div><div><br></div><div>Thanks Yasmeen for a few potential leads, i see quite a tension in these 'unprecedented times' with this sort of work since we want this sort of research usable/reproducible quickly, but there could be negative impacts. We'll see what else others may know before I go digging more...<br></div><div><br></div><div>Have a great weekend all,</div><div><br></div><div>Jon<br></div></div><br><div class="gmail_quote"><div dir="ltr" class="gmail_attr">On Fri, Jul 24, 2020 at 6:00 PM Shorish, Yasmeen L - shorisyl <<a href="mailto:shorisyl@jmu.edu" target="_blank">shorisyl@jmu.edu</a>> wrote:<br></div><blockquote class="gmail_quote" style="margin:0px 0px 0px 0.8ex;border-left:1px solid rgb(204,204,204);padding-left:1ex">
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<p class="MsoNormal"><span style="font-size:12pt;font-family:Avenir">Hi Jon,<u></u><u></u></span></p>
<p class="MsoNormal"><span style="font-size:12pt;font-family:Avenir"><u></u> <u></u></span></p>
<p class="MsoNormal"><span style="font-size:12pt;font-family:Avenir">Is the concern here that making this data available would make it easier for ‘bad actors’ to misuse the information to harm others, i.e. use the data to weaponize pathogens? Or that the
data could be used to undermine public safety be misrepresenting the data? <u></u>
<u></u></span></p>
<p class="MsoNormal"><span style="font-size:12pt;font-family:Avenir"><u></u> <u></u></span></p>
<p class="MsoNormal"><span style="font-size:12pt;font-family:Avenir">Depending on the relative risk, it may be more prudent to provide mediated access to the data. I don’t think there are fantastic rules for how we approach these scenarios from an ethics
perspective, but think that we should be cognizant of the potential harms and relative likelihood of that harms when advising researchers about data sharing.
<u></u><u></u></span></p>
<p class="MsoNormal"><span style="font-size:12pt;font-family:Avenir"><u></u> <u></u></span></p>
<p class="MsoNormal"><span style="font-size:12pt;font-family:Avenir">I haven’t looked into it, but maybe WHO or some biomed societies have recommendations? They may be more practice-related and not publication-related, but could be relevant?<u></u><u></u></span></p>
<p class="MsoNormal"><span style="font-size:12pt;font-family:Avenir"><u></u> <u></u></span></p>
<p class="MsoNormal"><span style="font-size:12pt;font-family:Avenir">Yasmeen<u></u><u></u></span></p>
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<p class="MsoNormal"><span style="font-family:"Avenir Book"">----<u></u><u></u></span></p>
<p class="MsoNormal"><span style="font-family:"Avenir Book"">Yasmeen Shorish <u></u><u></u></span></p>
<p class="MsoNormal"><span style="font-family:"Avenir Book"">Associate Professor | Head of Scholarly Communications<u></u><u></u></span></p>
<p class="MsoNormal"><span style="font-family:"Avenir Book"">JMU Libraries | Rose 2309<u></u><u></u></span></p>
<p class="MsoNormal"><span style="font-family:"Avenir Book""><a href="mailto:shorisyl@jmu.edu" target="_blank"><span style="color:rgb(5,99,193)">shorisyl@jmu.edu</span></a> | 540-568-4288 (not answering during pandemic)<u></u><u></u></span></p>
<p class="MsoNormal"><span style="font-family:"Avenir Book""><a href="https://events.lib.jmu.edu/appointments?u=8412" target="_blank"><span style="color:rgb(5,99,193)">Make an Appointment</span></a><u></u><u></u></span></p>
<p class="MsoNormal"><span style="font-family:"Avenir Book"">she/her/hers<u></u><u></u></span></p>
<p class="MsoNormal"><span style="font-family:"Avenir Book""><img style="width: 0.1666in; height: 0.1666in;" id="gmail-m_-2631360289305016307gmail-m_-818197506874371172Picture_x0020_1" src="cid:17382f4e3d54cff311" alt="cidimage001.png@01D57950.008B9570" width="16" height="16" border="0"> <a href="https://urldefense.proofpoint.com/v2/url?u=https-3A__orcid.org_0000-2D0002-2D4155-2D8241&d=DwMGaQ&c=eLbWYnpnzycBCgmb7vCI4uqNEB9RSjOdn_5nBEmmeq0&r=TkWm5-BITfd1ajk2ZCG2Yw&m=Yo_q64bkuzZsLoKb22qPOIZNeEkhNbhZluKVnq-dV3k&s=6jI7MUS8srH6jAgXPGrCEIBcekMRzxzK9zOdXzIjHzg&e=" target="_blank"><span style="color:rgb(5,99,193)">https://orcid.org/0000-0002-4155-8241</span></a><u></u><u></u></span></p>
<p class="MsoNormal"><span style="font-family:"Avenir Book""> <u></u><u></u></span></p>
<p class="MsoNormal"><span style="font-family:"Avenir Book"">I observe email free evenings and weekends.<u></u><u></u></span></p>
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<p class="MsoNormal"><span style="font-size:12pt;font-family:Avenir"><u></u> <u></u></span></p>
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<p class="MsoNormal"><b><span style="font-size:12pt;color:black">From: </span></b><span style="font-size:12pt;color:black"><<a href="mailto:rdap-bounces@kunverj.com" target="_blank">rdap-bounces@kunverj.com</a>> on behalf of Jonathan Petters <<a href="mailto:jpetters@vt.edu" target="_blank">jpetters@vt.edu</a>><br>
<b>Reply-To: </b>Research Data Access and Preservation <<a href="mailto:rdap@kunverj.com" target="_blank">rdap@kunverj.com</a>><br>
<b>Date: </b>Friday, July 24, 2020 at 16:21<br>
<b>To: </b>"Research Data, Access and Preservation" <<a href="mailto:rdap@kunverj.com" target="_blank">rdap@kunverj.com</a>><br>
<b>Subject: </b>[Rdap] Data resulting from biosafety-related research: to publicly share or not?<u></u><u></u></span></p>
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<p class="MsoNormal">Hi all,<u></u><u></u></p>
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<p class="MsoNormal">In working with a researcher who studies the airborne transmission of pathogens, I'm wondering about the ethics/rules around the public sharing of data resulting from such biosafety-related research.<u></u><u></u></p>
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<p class="MsoNormal">I've been looking around for clear guidance, and the most I've found so far is a vague statement from Nature: "It is a condition of publication that authors deposit their data in an appropriate repository, and agree to make the data publicly
available without restriction, excepting reasonable controls related to human privacy or biosafety."<u></u><u></u></p>
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<p class="MsoNormal">Anyone else here have more clear guidance from an institution/funder/journal that I've been unable to find?<u></u><u></u></p>
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<p class="MsoNormal">I can ask our IBC contact here on campus, but thought I'd ask the hivemind first :)<u></u><u></u></p>
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<p class="MsoNormal">Jon<br>
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<p class="MsoNormal"><span style="font-size:10pt;font-family:Arial,sans-serif;color:black">Jonathan Petters Ph.D.<br>
Assistant Director, Data Management & Curation Services</span><span style="font-size:9.5pt"><u></u><u></u></span></p>
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<p class="MsoNormal"><span style="font-size:10pt;font-family:Arial,sans-serif;color:black">Data Services, University Libraries<br>
Virginia Tech<br>
(540) 232-8682<br>
<a href="https://urldefense.proofpoint.com/v2/url?u=https-3A__lib.vt.edu_research-2Dteaching_data-2Dservices.html&d=DwMFaQ&c=eLbWYnpnzycBCgmb7vCI4uqNEB9RSjOdn_5nBEmmeq0&r=TkWm5-BITfd1ajk2ZCG2Yw&m=-4CUcy3YWKrZZBC-w26SknKeJKVdn5MAZE7Sc1vdrxY&s=Pc461tJLA7HP4lPh7SRbntivNeiC9ZWf2TMkn-YTBsk&e=" target="_blank">https://lib.vt.edu/research-teaching/data-services.html</a></span><span style="font-size:9.5pt"><u></u><u></u></span></p>
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<p class="MsoNormal"><span style="font-size:10pt;font-family:Arial,sans-serif;color:black">ORCID: 0000-0002-0853-5814</span><span style="font-size:9.5pt"><u></u><u></u></span></p>
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</blockquote></div><br clear="all"><br>-- <br><div dir="ltr"><div dir="ltr"><div><div dir="ltr"><div><div dir="ltr"><div><div dir="ltr"><div><div dir="ltr"><div><div dir="ltr"><div><div dir="ltr"><div><div dir="ltr"><div><div dir="ltr"><div><div dir="ltr"><div><div dir="ltr"><div style="font-size:12.8px"><font size="2" face="arial" color="#000000">Jonathan Petters Ph.D.<br>Assistant Director, Data Management & Curation Services<br></font></div><div style="font-size:12.8px"><font size="2" face="arial" color="#000000">Data Services, University Libraries<br>Virginia Tech<br>(540) 232-8682<br><a href="https://lib.vt.edu/research-teaching/data-services.html" target="_blank">https://lib.vt.edu/research-teaching/data-services.html</a><br></font></div><div style="font-size:12.8px"><font size="2" face="arial" color="#000000">ORCID: 0000-0002-0853-5814<br></font></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div>
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</blockquote></div><br clear="all"><div><br></div>-- <br><div dir="ltr" class="gmail_signature">Abigail Goben, MLS<br><a href="mailto:abigailgoben@gmail.com" target="_blank">abigailgoben@gmail.com</a><br><a href="http://HedgehogLibrarian.com" target="_blank">http://HedgehogLibrarian.com</a> <br></div>