[Rdap] Data resulting from biosafety-related research: to publicly share or not?

[Jonathan Petters]

Agnes, Yasmeen,

Thanks so much for your quick replies!

And  was not clear that this *particular research does not have human
subjects*! This is experimentation done in chambers in labs with particles
containing pathogens. So I was more thinking about the 'weaponizing
pathogens' concerns that Yasmeen discussed.

My apologies Agnes; your description of how to handle the de-identification
of the data and discussion with IRB sounds great to me for human subjects
research...it just doesn't happen to pertain in this case. That's what I
get for trying to dash off a question just before the weekend!

Thanks Yasmeen for a few potential leads, i see quite a tension in these
'unprecedented times' with this sort of work since we want this sort of
research usable/reproducible quickly, but there could be negative impacts.
We'll see what else others may know before I go digging more...

Have a great weekend all,

Jon

On Fri, Jul 24, 2020 at 6:00 PM Shorish, Yasmeen L - shorisyl <
shorisyl at jmu.edu> wrote:

> Hi Jon,
>
>
>
> Is the concern here that making this data available would make it easier
> for ‘bad actors’ to misuse the information to harm others, i.e. use the
> data to weaponize pathogens? Or that the data could be used to undermine
> public safety be misrepresenting the data?
>
>
>
> Depending on the relative risk, it may be more prudent to provide mediated
> access to the data. I don’t think there are fantastic rules for how we
> approach these scenarios from an ethics perspective, but think that we
> should be cognizant of the potential harms and relative likelihood of that
> harms when advising researchers about data sharing.
>
>
>
> I haven’t looked into it, but maybe WHO or some biomed societies have
> recommendations? They may be more practice-related and not
> publication-related, but could be relevant?
>
>
>
> Yasmeen
>
>
>
> ----
>
> Yasmeen Shorish
>
> Associate Professor | Head of Scholarly Communications
>
> JMU Libraries | Rose 2309
>
> shorisyl at jmu.edu | 540-568-4288 (not answering during pandemic)
>
> Make an Appointment <https://events.lib.jmu.edu/appointments?u=8412>
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>
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> I observe email free evenings and weekends.
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>
> *From: *<rdap-bounces at kunverj.com> on behalf of Jonathan Petters <
> jpetters at vt.edu>
> *Reply-To: *Research Data Access and Preservation <rdap at kunverj.com>
> *Date: *Friday, July 24, 2020 at 16:21
> *To: *"Research Data, Access and Preservation" <rdap at kunverj.com>
> *Subject: *[Rdap] Data resulting from biosafety-related research: to
> publicly share or not?
>
>
>
> Hi all,
>
>
>
> In working with a researcher who studies the airborne transmission of
> pathogens, I'm wondering about the ethics/rules around the public sharing
> of data resulting from such biosafety-related research.
>
>
>
> I've been looking around for clear guidance, and the most I've found so
> far is a vague statement from Nature: "It is a condition of publication
> that authors deposit their data in an appropriate repository, and agree to
> make the data publicly available without restriction, excepting reasonable
> controls related to human privacy or biosafety."
>
>
>
> Anyone else here have more clear guidance from an
> institution/funder/journal that I've been unable to find?
>
>
>
> I can ask our IBC contact here on campus, but thought I'd ask the hivemind
> first :)
>
>
>
> Jon
> --
>
> Jonathan Petters Ph.D.
> Assistant Director, Data Management & Curation Services
>
> Data Services, University Libraries
> Virginia Tech
> (540) 232-8682
> https://lib.vt.edu/research-teaching/data-services.html
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-- 
Jonathan Petters Ph.D.
Assistant Director, Data Management & Curation Services
Data Services, University Libraries
Virginia Tech
(540) 232-8682
https://lib.vt.edu/research-teaching/data-services.html
ORCID: 0000-0002-0853-5814
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