[Rdap] Data resulting from biosafety-related research: to publicly share or not?

Sun Jul 26 17:31:50 EDT 2020

Hi Jon! Another possibility might be whether any of it would fall outside
export control exceptions? Sounds probably outside of your interests, but
worth a thought.  Information is exempt, but materials or technologies are
not, for example. If this skirts the edge of materials for example with
 processes for materials creation, it might be a problem.

I sure you wanted another weird angle ;)
Nina

On Sat, Jul 25, 2020 at 2:33 PM Abigail Goben <abigailgoben at gmail.com>
wrote:

> Hi Jon!
>
> I've been increasingly recommending "samples" and "metadata only records"
> --  although that's also required a variety of new explanations to PIs what
> "no, them only asking you and you get to decide if they are good actors" is
> usually not idea. But it seems here you could specifically provide a
> comprehensive metadata record; a sample of a spreadsheet where data was
> captured (with example non real values) and a statement of "for interest,
> please contact Department Contact to arrange a Data Use Agreement with the
> Institution"
>
> Abigail
>
> On Fri, Jul 24, 2020 at 5:42 PM Jonathan Petters <jpetters at vt.edu> wrote:
>
>> Agnes, Yasmeen,
>>
>> Thanks so much for your quick replies!
>>
>> And  was not clear that this *particular research does not have human
>> subjects*! This is experimentation done in chambers in labs with
>> particles containing pathogens. So I was more thinking about the
>> 'weaponizing pathogens' concerns that Yasmeen discussed.
>>
>> My apologies Agnes; your description of how to handle the
>> de-identification of the data and discussion with IRB sounds great to me
>> for human subjects research...it just doesn't happen to pertain in this
>> case. That's what I get for trying to dash off a question just before the
>> weekend!
>>
>> Thanks Yasmeen for a few potential leads, i see quite a tension in these
>> 'unprecedented times' with this sort of work since we want this sort of
>> research usable/reproducible quickly, but there could be negative impacts.
>> We'll see what else others may know before I go digging more...
>>
>> Have a great weekend all,
>>
>> Jon
>>
>> On Fri, Jul 24, 2020 at 6:00 PM Shorish, Yasmeen L - shorisyl <
>> shorisyl at jmu.edu> wrote:
>>
>>> Hi Jon,
>>>
>>>
>>>
>>> Is the concern here that making this data available would make it easier
>>> for ‘bad actors’ to misuse the information to harm others, i.e. use the
>>> data to weaponize pathogens? Or that the data could be used to undermine
>>> public safety be misrepresenting the data?
>>>
>>>
>>>
>>> Depending on the relative risk, it may be more prudent to provide
>>> mediated access to the data. I don’t think there are fantastic rules for
>>> how we approach these scenarios from an ethics perspective, but think that
>>> we should be cognizant of the potential harms and relative likelihood of
>>> that harms when advising researchers about data sharing.
>>>
>>>
>>>
>>> I haven’t looked into it, but maybe WHO or some biomed societies have
>>> recommendations? They may be more practice-related and not
>>> publication-related, but could be relevant?
>>>
>>>
>>>
>>> Yasmeen
>>>
>>>
>>>
>>> ----
>>>
>>> Yasmeen Shorish
>>>
>>> Associate Professor | Head of Scholarly Communications
>>>
>>> JMU Libraries | Rose 2309
>>>
>>> shorisyl at jmu.edu | 540-568-4288 (not answering during pandemic)
>>>
>>> Make an Appointment <https://events.lib.jmu.edu/appointments?u=8412>
>>>
>>> she/her/hers
>>>
>>> [image: cidimage001.png at 01D57950.008B9570]
>>> https://orcid.org/0000-0002-4155-8241
>>> <https://urldefense.proofpoint.com/v2/url?u=https-3A__orcid.org_0000-2D0002-2D4155-2D8241&d=DwMGaQ&c=eLbWYnpnzycBCgmb7vCI4uqNEB9RSjOdn_5nBEmmeq0&r=TkWm5-BITfd1ajk2ZCG2Yw&m=Yo_q64bkuzZsLoKb22qPOIZNeEkhNbhZluKVnq-dV3k&s=6jI7MUS8srH6jAgXPGrCEIBcekMRzxzK9zOdXzIjHzg&e=>
>>>
>>>
>>>
>>> I observe email free evenings and weekends.
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>> *From: *<rdap-bounces at kunverj.com> on behalf of Jonathan Petters <
>>> jpetters at vt.edu>
>>> *Reply-To: *Research Data Access and Preservation <rdap at kunverj.com>
>>> *Date: *Friday, July 24, 2020 at 16:21
>>> *To: *"Research Data, Access and Preservation" <rdap at kunverj.com>
>>> *Subject: *[Rdap] Data resulting from biosafety-related research: to
>>> publicly share or not?
>>>
>>>
>>>
>>> Hi all,
>>>
>>>
>>>
>>> In working with a researcher who studies the airborne transmission of
>>> pathogens, I'm wondering about the ethics/rules around the public sharing
>>> of data resulting from such biosafety-related research.
>>>
>>>
>>>
>>> I've been looking around for clear guidance, and the most I've found so
>>> far is a vague statement from Nature: "It is a condition of publication
>>> that authors deposit their data in an appropriate repository, and agree to
>>> make the data publicly available without restriction, excepting reasonable
>>> controls related to human privacy or biosafety."
>>>
>>>
>>>
>>> Anyone else here have more clear guidance from an
>>> institution/funder/journal that I've been unable to find?
>>>
>>>
>>>
>>> I can ask our IBC contact here on campus, but thought I'd ask the
>>> hivemind first :)
>>>
>>>
>>>
>>> Jon
>>> --
>>>
>>> Jonathan Petters Ph.D.
>>> Assistant Director, Data Management & Curation Services
>>>
>>> Data Services, University Libraries
>>> Virginia Tech
>>> (540) 232-8682
>>> https://lib.vt.edu/research-teaching/data-services.html
>>> <https://urldefense.proofpoint.com/v2/url?u=https-3A__lib.vt.edu_research-2Dteaching_data-2Dservices.html&d=DwMFaQ&c=eLbWYnpnzycBCgmb7vCI4uqNEB9RSjOdn_5nBEmmeq0&r=TkWm5-BITfd1ajk2ZCG2Yw&m=-4CUcy3YWKrZZBC-w26SknKeJKVdn5MAZE7Sc1vdrxY&s=Pc461tJLA7HP4lPh7SRbntivNeiC9ZWf2TMkn-YTBsk&e=>
>>>
>>> ORCID: 0000-0002-0853-5814
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>>
>>
>> --
>> Jonathan Petters Ph.D.
>> Assistant Director, Data Management & Curation Services
>> Data Services, University Libraries
>> Virginia Tech
>> (540) 232-8682
>> https://lib.vt.edu/research-teaching/data-services.html
>> ORCID: 0000-0002-0853-5814
>> _______________________________________________
>> RDAP mailing list
>> RDAP at mail.kunverj.com
>> http://mail.kunverj.com/mailman/listinfo/rdap
>>
>
>
> --
> Abigail Goben, MLS
> abigailgoben at gmail.com
> http://HedgehogLibrarian.com
> _______________________________________________
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-- 
Mx. Nina Exner, PhD, MLS (she/her)
Research Data Librarian
VCU Libraries, Virginia Commonwealth University
509 N. 12th St., Box 980582
Richmond, VA 23298-0582

+1 (804) 628-2714
nexner at vcu.edu
ORCID 0000-0002-8746-8364

<https://orcid.org/0000-0002-8746-8364>
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