[Rdap] Data resulting from biosafety-related research: to publicly share or not?

Sun Jul 26 17:57:24 EDT 2020

Hi Jon,
I was thinking along tbe same line. Had a situation a year ago with ITAR research. The only storage solution on campus was Labarchives. I looked into repositories and realized it was up to the granting agency- US Military - to makr yhr decision.

Daureen Nesdill
Univ. of Utah

Sent from my Verizon, Samsung Galaxy smartphone

-------- Original message --------
From: Nina Exner <nexner at vcu.edu>
Date: 7/26/20 3:40 PM (GMT-07:00)
To: Research Data Access and Preservation <rdap at kunverj.com>
Subject: Re: [Rdap] Data resulting from biosafety-related research: to publicly share or not?

Hi Jon! Another possibility might be whether any of it would fall outside export control exceptions? Sounds probably outside of your interests, but worth a thought.  Information is exempt, but materials or technologies are not, for example. If this skirts the edge of materials for example with  processes for materials creation, it might be a problem.

I sure you wanted another weird angle ;)
Nina

On Sat, Jul 25, 2020 at 2:33 PM Abigail Goben <abigailgoben at gmail.com<mailto:abigailgoben at gmail.com>> wrote:
Hi Jon!

I've been increasingly recommending "samples" and "metadata only records" --  although that's also required a variety of new explanations to PIs what "no, them only asking you and you get to decide if they are good actors" is usually not idea. But it seems here you could specifically provide a comprehensive metadata record; a sample of a spreadsheet where data was captured (with example non real values) and a statement of "for interest, please contact Department Contact to arrange a Data Use Agreement with the Institution"

Abigail

On Fri, Jul 24, 2020 at 5:42 PM Jonathan Petters <jpetters at vt.edu<mailto:jpetters at vt.edu>> wrote:
Agnes, Yasmeen,

Thanks so much for your quick replies!

And  was not clear that this particular research does not have human subjects! This is experimentation done in chambers in labs with particles containing pathogens. So I was more thinking about the 'weaponizing pathogens' concerns that Yasmeen discussed.

My apologies Agnes; your description of how to handle the de-identification of the data and discussion with IRB sounds great to me for human subjects research...it just doesn't happen to pertain in this case. That's what I get for trying to dash off a question just before the weekend!

Thanks Yasmeen for a few potential leads, i see quite a tension in these 'unprecedented times' with this sort of work since we want this sort of research usable/reproducible quickly, but there could be negative impacts. We'll see what else others may know before I go digging more...

Have a great weekend all,

Jon

On Fri, Jul 24, 2020 at 6:00 PM Shorish, Yasmeen L - shorisyl <shorisyl at jmu.edu<mailto:shorisyl at jmu.edu>> wrote:
Hi Jon,

Is the concern here that making this data available would make it easier for ‘bad actors’ to misuse the information to harm others, i.e. use the data to weaponize pathogens? Or that the data could be used to undermine public safety be misrepresenting the data?

Depending on the relative risk, it may be more prudent to provide mediated access to the data. I don’t think there are fantastic rules for how we approach these scenarios from an ethics perspective, but think that we should be cognizant of the potential harms and relative likelihood of that harms when advising researchers about data sharing.

I haven’t looked into it, but maybe WHO or some biomed societies have recommendations? They may be more practice-related and not publication-related, but could be relevant?

Yasmeen

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From: <rdap-bounces at kunverj.com<mailto:rdap-bounces at kunverj.com>> on behalf of Jonathan Petters <jpetters at vt.edu<mailto:jpetters at vt.edu>>
Reply-To: Research Data Access and Preservation <rdap at kunverj.com<mailto:rdap at kunverj.com>>
Date: Friday, July 24, 2020 at 16:21
To: "Research Data, Access and Preservation" <rdap at kunverj.com<mailto:rdap at kunverj.com>>
Subject: [Rdap] Data resulting from biosafety-related research: to publicly share or not?

Hi all,

In working with a researcher who studies the airborne transmission of pathogens, I'm wondering about the ethics/rules around the public sharing of data resulting from such biosafety-related research.

I've been looking around for clear guidance, and the most I've found so far is a vague statement from Nature: "It is a condition of publication that authors deposit their data in an appropriate repository, and agree to make the data publicly available without restriction, excepting reasonable controls related to human privacy or biosafety."

Anyone else here have more clear guidance from an institution/funder/journal that I've been unable to find?

I can ask our IBC contact here on campus, but thought I'd ask the hivemind first :)

Jon
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